The impact of improving haemophilia A management within the Spanish National Healthcare System: a social return on investment analysis

Year: 2022

Publisher: BMC Health Services Research

Abstract: Hemophilia A (HA) has been associated with poor health-related quality of life and a large economic burden, accentuated by severity, arthropathy, and inhibitors. To meet global standards of care, the management of HA must align with the principles of care outlined by the World Federation of Hemophilia.

The objectives of the present study were to establish a set of proposals to improve the management of HA within the Spanish National Health System (NHS) and to estimate the impact that its hypothetical implementation would generate from a clinical, care, economic, and social perspective.

A multidisciplinary group of experts agreed on a set of 15 proposals to improve the management of HA in the NHS. A social return on investment analysis was then carried out to estimate the impact of implementing this set of proposals in the NHS over a period of one year, in relation to the investment required.

Keywords: Disease management, Economic evaluation, Social impact, Public health, Rare disease, Spain

How to cite: Soto, I., Mateo, J., García-Diego, DA. et al. The impact of improving haemophilia A management within the Spanish National Healthcare System: a social return on investment analysis. BMC Health Serv Res 22, 115 (2022). https://doi.org/10.1186/s12913-021-07447-4