NOTICIAS

New episode of “Rare Horizons”, a podcast focused on rare disease research

New episode of “Rare Horizons”, a podcast focused on rare disease research 768 313 Weber

In the third episode of Rare Horizons, we explore the critical role of biobanks in rare disease research. The scarcity of biological samples is a significant obstacle in the research…

New episode of “Rare Horizons”, a podcast focused on rare disease research

New episode of “Rare Horizons”, a podcast focused on rare disease research 768 313 Weber

The second episode of our podcast draws attention to this big community of patients who are forced to learn to navigate uncertainty. People need to name things. Naming is our…

Weber Foundation launches “Rare Horizons”, a new podcast focused on rare disease research

Weber Foundation launches “Rare Horizons”, a new podcast focused on rare disease research 768 313 Weber

We have launched a monthly podcast, in collaboration with Share4Rare, which aims to explore diverse topics relevant to rare disease research and innovation. Named Rare Horizons, the podcast will delve…

Se celebra la primera reunión del «Proyecto AvanceHS: Carga económica y deterioro acumulativo de la calidad de vida de la Hidradenitis Supurativa»

Se celebra la primera reunión del «Proyecto AvanceHS: Carga económica y deterioro acumulativo de la calidad de vida de la Hidradenitis Supurativa» 768 313 Weber

La Fundación Weber ha organizado en Madrid la primera reunión del «Proyecto AvanceHS: Carga económica y deterioro acumulativo de la calidad de vida de la Hidradenitis Supurativa», con la colaboración…